I am blessed to have followers and supporters who have been asking how I’m doing and noting that there’s not been a great deal of blogging going on. I recently had a talented friend and career/relationship coach (see Jolene Watson’s Clarity Coaching) do a Myers Briggs analysis with me, and found I’m an intuitive thinker. I use that as my excuse – I need to process things before I write about them, and writing about them helps me crystallize and process them. Okay?
For whatever reason, being in the midst of the treatment treadmill has definitely slowed down my writing. That’s a whole post for later on.
For now, quick update. I can see by my blog record that my last post was 161 days ago, and that I was about a week away from finishing six weeks of combined daily radiation and chemo treatments. After that I had a month off from treatment for recovery, and spend most of it suffering through the side effects of tapering off the steroid I’d been on during radiation. Spoiler alert – this steroid did not give me bulging ripped muscles, as I’d rather fancifully imagined it might. Rather, over the three months I was on it, I gained 30 pounds (on a 110 pound frame) of bulging puffiness, a great deal of manic energy that hit between 2 and 11 am, and a voracious appetite (see previous note re weight gain).
In January, I started a different kind of treatment routine in follow-on chemo. This has involved one week of oral chemotherapy per month, for what will soon be six months. My whole treatment experience divides into neat chapters in my mind: diagnosis and watchful waiting; tumor progression; surgery and recovery; combined radio/chemo and recovery; then follow-on chemo. Each of these is full of experiences I will share in future, in the hope that someone else will find some help in them, and in slavery to my own selfish intuitive thinking processes.
The month of May 2016 is the first time we will see a coordinated brain tumor awareness month between Canada and the US. So we are encouraged to #TurnMayGrey. This will be a month for sharing information and experiences with brain tumors, for patients and caregivers, and for advocacy and awareness building. I ask myself, what better time to breathe a little life back into Greymadder? Stay tuned. For now – I’m still here, and I’m keeping on keeping on!